What a sweetheart. Jessie said that Macey is her BEST friend now. It was such a nice visit, and Macey looks so good. Lilly is so grown-up. Hope to see you soon.
Hi, My name is Linda and I am the mother of a child with Neurogenic bladder, his name is David and he is in Childrens Specialized Hospital in New Brunswick NJ. I am in search for a doctor who can help him. He is going in for a g tube placement on Tuesday. There is a lot to tell you about this but in short, he had a mitrofanoff catheter placed and it has gone bad. The surgeon who did this surgery has lost my confidence. Can I somehow contact you to find out more and perhaps avoid anything more than what David has gone through? my email address is artgal4@yahoo.com. thank you
my nephew is 10 months old and has been diagnosed with neurogenic pseudoobstruction. We've just been told that he will need a small bowel transplant. We are desperate because all we've heard about it is how bad the survival rate is. Can you please share your experience with us?? Any experiences or information that may help us. Thank you
Some good news
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Dr. Costa, Jen's transplant surgeon, came out and told me the upper GI
scope looked good. So they are going to do a lower scope again to get a
second loo...
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Originally posted Monday, May 7, 2012:
If the phone won't stop ringing...
The e-mail won't stop coming...
The texts won't quit dinging...
and FB won't stop...
Guilt and Gratitude
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*It is very easy to feel the pain of guilt when one is stricken by a
chronic digestive motility disease or disorder. Even though in reality, we
did not cau...
New addition to the family
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Wow, it's been a long time since I've updated this. To be honest, I didn't
want to write here when William was so unwell over the summer. He had 8
weeks wi...
What a sweetheart. Jessie said that Macey is her BEST friend now. It was such a nice visit, and Macey looks so good. Lilly is so grown-up. Hope to see you soon.
ReplyDeleteHi, My name is Linda and I am the mother of a child with Neurogenic bladder, his name is David and he is in Childrens Specialized Hospital in New Brunswick NJ. I am in search for a doctor who can help him. He is going in for a g tube placement on Tuesday. There is a lot to tell you about this but in short, he had a mitrofanoff catheter placed and it has gone bad. The surgeon who did this surgery has lost my confidence. Can I somehow contact you to find out more and perhaps avoid anything more than what David has gone through? my email address is artgal4@yahoo.com. thank you
ReplyDeletemy nephew is 10 months old and has been diagnosed with neurogenic pseudoobstruction. We've just been told that he will need a small bowel transplant. We are desperate because all we've heard about it is how bad the survival rate is. Can you please share your experience with us?? Any experiences or information that may help us. Thank you
ReplyDeletemy email address is kappyj74@yahoo.com
Babesia - Parasites?
ReplyDelete